WISCONSIN STATE JOURNAL ARTICLE--Christmas 2015

WISCONSIN STATE JOURNAL ARTICLE--Christmas 2015
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Thursday, March 20, 2014

Planning for Surgery

Huahua has big plans to be a Doctor!  She's involved in her first cardio internship here (unpaid!)


Yesterday Huahua saw her cardiologist and we discussed the next steps in planning her Fondan procedure.  This procedure is usually done when a child is between 3-5 years old.  Many pieces go together to decide when is the "right" time to move forward with this next step, primarily her heart functioning and daily behavior.  Of concern has been her elevated red blood cell count which  makes them believe she is not functioning as good as she looks.  Her body is for some reason believes it is starving for oxygen and the cells are responding in this way.   There are inherent risks allowing her to continue with elevated levels as she is. So the next step is a cardiac catheterization to access her true functioning of the heart and map out her uniquely formed heart.  It is really amazing to hear how her heart is formed (with single ventricle and one common atrium) with the values coming in at different angles, and wrong positions, yet her heart has managed to work and keep her going.  We praise God for her life and the joy she brings to us! The doctors will then decide if a MRI is necessary for further mapping.  Most likely, but apparently it is not possible to run both tests while under the same time frame (which would be nice) eliminating the need to put her under general anesthesia twice for these tests. But since they both involve different assortments of dyes, they have to run separately.

 So as we hear her breathing more heavily and labored we can rest assured medical treatment is so readily available and we a have a team of doctors working in her best interest.  At the same time, my heart aches for Selah, as she awaits her treatment in China.  This week they found her heart is a "complicated" case, as is Huahua.  We pray they will find value in her life and continue to find the best treatment available for her and not deny her care.  We continue to fund raise for her.  As we never blinked an eye at the thought for Huahua, only that we want the best of the best for her.   EVERY child is valuable in God's eyes and created for a purpose.  Please consider helping Selah bring joy to her forever family and become the daughter she was meant to be.

Donate online at http://unadopted.org/donate-2/

This is through Lifeline Children Services- our adoption agency we used to adopt Huahua.
Follow updates on Selah at http://newdayfosterhome.blogspot                          
For those of you that have met Huahua it's hard to believe she slows down.  But she does and she has been more lately and crashing hard.  Her body is slowing down and she is resting, and sleeping more.  The other day she was passed out asleep on the kitchen floor, face down on the tile floor. As cute as it was ( I snapped a picture).....it was also an eye opener to her true heart functioning.

 But true to her sense of style....even though she passed out in the car, she did it with the shades on....upside down!  She continues to bring laughter and joy wherever she goes.  If she's around there's bound to be someone laughing!   While at the doctors' office yesterday she was sitting at the table just chatting away, having a little self reflection, about her day, a woman commented how intelligent Huahua was. When I told the woman she was only introduced to known English three months ago, her mouth dropped open.  I can't imagine how incredible she'll feel once we have her running with a higher oxygen level.  Watch out!!!

Today while at the doctor's office for Jackson she went up to a little girl with Down syndrome and starting playing with her.  Her heart is so big and sweet for everyone she meets.  Her ability to meet and greet with a smile is going to take her places and share the good news with many.  It just makes me smile!                                                            


Enjoying a little treat with her sister at Culver's
We still have a shoe fetish....even the baby needs shoes!

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