WISCONSIN STATE JOURNAL ARTICLE--Christmas 2015

WISCONSIN STATE JOURNAL ARTICLE--Christmas 2015
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Saturday, November 25, 2017

Thankfulness



Five years ago our family looked much different.  Somewhat stressed after a year of medical trials and multiple surgeries,  but thankful for a successful lengthening of Jackson's femur.  Thankful for our church community, family and friends that held us together during the hard.  Thankful for our access to cutting edge medical procedures that take life altering congenital diagnosis and make them manageable nuances.   We thought it was the end of our trials.....we later would learn it was only the beginning.

At the same time......Five years ago in a large orphanage in China sat a little girl with a broken little heart dying. Her lips purple, her fingertips curled over from lack of oxygen.  She was losing her fight to untreated congenital heart disease....
"Tessa" (about 1 year)
"Tessa" (about 18 months)
But someone had fallen in love and God planted it in her heart to fight for this little girl.  Aunt Katie, (holding her in the black and white photo above) had already started into process a massive fundraiser to save this purple princess.  Love without Boundaries partnered with her fundraising efforts and Tessa (later Selah) would have her first heart surgery at 21 months old.  A living miracle to survive without cardiac intervention for that long!  A few months later....our family would be called to adoption and this little girl's file would now be prepared.  Never would we have thought HEART kiddos would be our calling, but again, "Seek HIS will".  Side note....We thought orthopedic would be easier  :)  We had experience in that!


"Tessa" (about 2 years)
Speaking of ortho needs....  This picture is from a video we received of Huahua......Do you recognize a little boy in the background?  That's James!   

I could go on and on about the blessings and  miracles.....writing this is good for me to remember how fortunate we are.  God has been in the details, weaving things together, even when we feel so alone.  Large families are different...Maybe distinguished is a better word.... Maybe just plain determined for many reasons!  Determined to fight for injustices, share the good things and spread a little love.  But sometimes that means not fitting in, by all means, our mini bus does NOT fit in! Like the movie Wonder says "why fit in, when you were made to stand out?" 

Fast forward five years......



Our house exploded!   Mostly with boys and one more sweet girl.
The first three have grown and matured in ways that could have never happened had we not (i mean) had God not chosen this path for our family. 
Most days are chaos, trying to find the other glove or shoe, getting the right shirt, pants, hat on the right child,  shifting through poop to find the coin someone swallowed, getting the toddler down from....WHERE?!?!?!?!   But we need to step back and see the big picture.  We have so much to be thankful for among the chaos filled days.   How were we chosen to be these children's parents and forever family?

This season has been rough, with challenging behavior, medical appointments/testing, and family stress.  We will not focus on the day to day rough moments, rather step back and be thankful for the wholeness of our family.  For I know across an ocean there are parents who ultimately gave their hearts away the moment they sat their sweet babes on a cold, dark, sidewalk.....and walked away....simply in hope of saving their children.  So in those moments of rough, our Hope needs to fall on the one who gives us the ultimate Hope in time of need.

Recently I had a good friend remind me our blessings, as we shared in our celebration of Wen Xiang's third birthday.   This friend has been one of the greatest examples living faith during trials.

We never know how God is going to use us or what he is going to ask of us.  This year has been extra special, as this friend and her family has finally welcomed home her son after waiting 4 long years.  Yes she has watched, and faithfully walked with us, as we have brought home four children---all while her son was waiting red tape to be cleared.  We sing praises together!!! And some good backyard football!  It's been magical to see God working the blending of them together!



 
               JORDAN                                               JACOB WEN XIANG




           
                      JUSTIN                                                              JESSICA



JOSEPH

JAMES





JACKSON


            This was Joseph and Jessica's "wedding".   Even though they were just the flower girl and ring bearer....they made it their own!  Joseph feels like he won the lottery!!!

NINE!!!! Can it really be?
                                                     
Jackson tearing it up!
Joseph is officially six and working his way into the construction industry!


                                                                   One year HOME!!!
Nine years old.   WOW!!!

Justin taking a few laps in the back yard.  On the bike equals his happy place!
Jessica (Tessa five years later)

Thankful we said yes.... and followed the path of HIS WILL..... thankful for what our growing family & adoption teaches us about ourselves and the faithfulness of our GOD.

Tuesday, June 6, 2017

Post heart surgery report

A MIGHTY WARRIOR.....this battle has been fought.  AND WON!

 He has scars.  Lots of battle scars.  The physical ones heal first and then slowly the emotional ones.  The pokes and unknown, the skittishness.  The uneasiness of what is coming, time will heal.   We're emotionally exhausted from this battle.  Overall the surgery, and recovery went well.  He had the usual pain management at first, urology issues and too many people messing down there, chest tubes prematurely eking out (can't imagine why on a constantly moving 2 year old), insomnia, and pesky plural effusions had him readmitted for a fifth chest tube over memorial weekend.  Recovery always has it's ups and downs, but we have to keep the perspective on the big picture, of the miracle, he is given.  Wen Xiang has a severe form congenital heart disease.  It's not fixable.  It's managed and though I would never say this about my children, because it gives the disease the power, some would say terminal.   So for now, we rejoice in the success of this surgery and the years he has with us. Again in the CHD world chose HOPE!

 He is monitored closely now going to the hospital twice a week for x rays watching for plural effusions.  Taking seven medications/three times a day.  I have learned now to pack an overnight bag....that way you don't stay...  that's what I have been told!    
Everyone needs a posse of brothers and sisters to stand behind you to help you heal!  Visiting day!!


Diving back into life at the pool.  



Sunday, May 7, 2017

Open Heart Surgery

Open heart surgery is a  medical term to describe when the chest wall is cut open so the surgeon can access the heart and make repairs.  The heart/lung system is put on a bypass machine to allow the repairs.  The bypass machine takes over circulating blood through the body, while the heart essentially is lifeless, and under construction.    To read what the Fontan procedure is see http://www.childrensheartclinic.org/Fontan.pdf 

Surgery was scheduled for May 10....but we received a call on Friday after the surgical team discussed his case more and the consensus is he needs another heart catheterization before surgery. He is a high risk candidate and we want to be sure we have all the data before entering the operating room. Please pray his results on Tuesday, his catheterization is set for 1 pm.  If results are favorable, surgery will be Friday at 7:30 am.

This Week will be the 27th and 28th procedure/surgery under anesthesia for our children.  Leading up to surgery, for me, is worse than when they are in the operating room. The what ifs, second guessing ourselves is over once we hand them over to the surgical team.    It's the emotional preparation of our own hearts.  Trusting the Lord, no matter the outcome. These children are a gift, life is temporary, and everyday should be treasured and not taken for granted.   My camera has been extra busy these past few days snapping pictures of a special little boy.   He is treasured, more than you can ever imagine. Here's a few....





















 











We would be lying if we said this next week doesn't have us scared.  But we have Hope for this little guy.  The road is going to be hard and long, and know our God will never leave us to fight this battle alone. He will be with us through the flood and the fire.  I have clung to this song lately  by Tenth Avenue North  "I have this Hope" in the depths of my soul.

https://www.youtube.com/watch?v=ppy91cTHYJ4   

"I Have this Hope" by Tenth Avenue North