WISCONSIN STATE JOURNAL ARTICLE--Christmas 2015

WISCONSIN STATE JOURNAL ARTICLE--Christmas 2015
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Tuesday, October 20, 2015

More hospital updates!

His ambulatory ability is returning day by day and his spirit comes through with a few smiles now and then! 6 . The overwhelming love and support we have received. Thank you to everyone. We feel very loved. Things to pray for..... His stomach and intentional issues. He is not being fed any food through his feeding tube. Only clear liquids and fluids right now. Amazing how he moves after two weeks living only on fluid. His intestines need to start absorbing nutrients and accepting food. Pray for the Drs and us as we decide if a surgical intervention is needed to tack down his malrotated intestines. (Ladd's procedure). Pray for his fluid in his lungs to continue to clear out. We have a long long way to go before chest tubes can come out!







News of the day!! Praise for Feng YuS ability to eat food after 16 long days post surgery! And keep it down!!!!Amen for that! Still planning on a ultrasound in the am to check anatomy. Pray now for plural effusions to dry up. Thank you to the body of Christ who has shown so much in loving us in tangible ways. It's hard to accept help at times, but so comforting to know we don't walk this road alone. Romans 15:13. Has been my go to verse.
Our hope is in the Lord




Getting our kids back on a bike is the best PT! Runs in the family.



Day 18 of our hospital stay. Yes it is getting long, and some days things seems to move more backwards than forwards. I am reminded to step back and look at the big picture. Only three weeks ago, lived with 80% oxygen and ran around until his stats fell to 60's and he would fall to the ground in exhaustion. Now he is at 100 % with limited support! His heart is now functioning in a sinus rhythm and he will not need a pace maker! His spirit has returned and his spunky little self it showing more often. Today I even heard his sweet voice tell me "mama, you're pretty", as he stroked my face. It's moments like that, that make me continue, make me fight for him and all those left behind! There are thousands in China, Millions of children around the world waiting to know that they are loved! Waiting for a mama and dada to love them through the hard times...... and so many times it's us who are rewarded over and again!
Feng Yu has returned to eating (AMEN!!!), but his body is not processing fats well at this point. The second picture shows his drain tubes. That is called chylothorax. Basically the fat draining from his plural space in his chest. So he is limited to 12 grams of fat.day. He has excessive drainage and we are days, if not a week or more, from taking the chest tubes out. He has been putting out between 550-670 ml of fluid a day in his chest tubes. We need to below 40 ml for a few days in a row to remove them. Pray, pray for this!
Please pray for perseverance for our family and other children at home. This is such a long period to be apart from one another. Especially the newly adopted kiddos to understand home will return to normal once again. Ryan has been blessed with help with meals and cleaning from church friends and neighbors, and grandparents closeby help things go smoothly too. He has done an exceptional job with managing school schedules, dr appointments and continuing to work from home. Not to mention the daily running of the house. Thank you for your prayers and support.
Adoption is not about us! It is not about growing a perfect little family (or in our case BIG family). We are growing and learning that in all circumstances our strength comes from the Lord. And in these moments when things seem hard to see our son suffer, I can know my God suffered so much more..... he sent his own son to die so that we might live. Ryan and I are called to adoption and we live in faith of the true healer who can heal our son.




Saturday all the children came up to the hospital, while James and Dad went to the Badger game. James was chosen through a drawing to be on the American Family Children's Hospital patio during the game. He was treated like royalty and loved all the goodies and extra fun during the game! The other kiddos and I watched the game at the hospital with Feng Yu. Huahua did her best therapy with him and played with him. These two have a bond that is incredible!
Mom got a break last night from the hospital. With mixed emotions, I left the hospital with the other five children and drove home. The kids asked how I felt to be out of the hospital after 19 days? I told them it was hard to leave Feng Yu and Dad behind at the hospital. And it was. How do you leave your child behind? He knew I would return the next day to be with him. But it still ached in my heart to leave him at the hospital knowing he is so sick. It leads me back to the day when his birth parent left him in front of an orphanage gate with a broken heart four years ago; what anguish their heart must have been in? Oh the pain this little boy has seen. I cry out to the Lord "why? Why must we live in this fallen world?"
But as I knew what was best for our other children, I needed to go home and be with them for awhile. I needed to rest and regroup for another long journey that lies ahead.
The children and I went to a hayride with church this afternoon before returning to the hospital. Today, as much as I wanted to come and see my sweet boy, I cried, knowing what we still have left to endure here. I ache for him and the long days ahead, and the separation from those he loves. Yes, this hospital is amazing and he is taken care of so well. But we are so, so ready to go home and be a family again!



We saw sunshine today !!!! On the outside of the hospital !!!! 21 days later after entering the hospital he was allowed outside for some fresh air. Joseph enjoyed watching the cars and action in front of the hospital . Biggest reaction was for the Harley that pulled in. The boy loves his bikes! Medically were just holding stable. Chest tube drainAge continues to be the main concern. Consensus is to give him another week to dry up before proceeding with surgical intervention . Pray for his pressures to stabilize so his body stops producing this excess fluid.






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