Lori Kietzke Oehlhof uploaded a new video.
Time in the playroom! Emotionally it was time to get out of the room. He did great. Medically we are still making baby steps forward and right now working to get fluid out of his plural cavity. He had such excessive pleural effusions today they pulled the pain block put in yesterday because of worries of where it might be draining. We wait and watch for chylothorax which they suspect may be happening and have put him on a very very low fat diet. He has only received substance from the feeding tube but took a few bites of his siblings Popsicles today! Big mountains, small steps. Pray for his spirit not to be defeated! Pray for him to know there is an end and we will go home! Pray for him to feel loved!
Lori Kietzke Oehlhof uploaded a new video.
Walking after major heart surgery. Triumphly rejoice!
On our way for another test right now after a day of abdominal pain, diarrhea and vomit and inability to handle his feeding tube food! This child has been through the ringer. Going to rule out twisted intestines. Prayers needed for him.
Many of you have asked how to help us through this battle.... This is how we would like to honor Joseph's heart! Please consider a donation on his behalf to save another baby!
No comments:
Post a Comment