Feng Yu's Cardiac Update

Rockin out in a dance party in the living room!    Both boys loves music and love to dance.

                                                      Snuggle time with Daddy

Nianjie was helping to document the dance party, as mom was taking pictures, he began taking them too.

                                           Jackson showing us some moves......

                                         Monkey see.......monkey do..........

The little boys have figured out the joy of remote control trucks and then ways to make them crash!  DOWN THE STAIRS!

 Yes, they really have begun to start to form a brotherly bond and love each other.   And this is what brothers do best-wrestle!  So thankful for their common language bond to communicate.  Feng Nianjie has been my interpreter many times for the little guy and he listens to him!

"No I did not pull the dog's tail......very hard"

Yesterday, Feng Yu had the first of many cardiac appointments.  We knew when we said "yes" to his file and asked the Chinese government for approval to be his parents in October 2014, we knew three things.  

                          1.  There were many unknowns about his cardiac health situation.

                          2.  He was meant to be our son.

                          3.  God is in control.

Having a child with any special needs can be taxing on your emotional health but finding out how your child's heart anatomy will affect the rest of his life can be overwhelming.  I felt at ease throughout the appointment as we learned how uniquely formed this little guy is.  How can his heart even be functioning?  As I watched the ECHO tech scan his heart for an 1 1/2 hours, way longer than usual, I could tell by her face she was perplexed. We have been in ECHO's before with Huahua's unique heart but this was taking a long time!  

 

So this is what we have learned so far...Feng Yu has situs inversus.  This is where his major organs can be mirrored (or reversed) position.  95% of the people with this condition have a heart condition. His heart has 4 chambers (good news) but the atrium and ventricles are flipped in the wrong position. The 4 chambers give me hope, yet there is a large ventricle septic defect (hole between the two of the them) currently so he functions as a single ventricle.  He has had the Glenn procedure in Ch*ina at 10 months, which routes the superior vena blood (from to the upper part of his body ) directly to the pulmonary artery which goes to the lungs and bypasses the heart.  That way the heart only has to pump a portion of the blood to his lungs.  But currently his blood in mixing of course because of the holes and leaky values (mitrial which acts like a tricuspid because it comes from the wrong atrium)  and the Aortic value is leaking.  So we have some more information to collect via tests in the 6-8 weeks.  We want him to settle in and get comfortable and us to get all the medical information possible before making the biggest decision of the little guy's life- which surgical route we will take.  One will give him a chance for a normal functioning heart but with big surgical risk and the other will be the safer route with a sure heart failure down the road (eventually needing a heart transplant).  Huahua is already in the second boat because she had no other option.  So we are thankful for this opportunity to give him a possible chance to save both ventricles, but fear the dangerous risk in surgery.  Pray for the doctors assessment of him and our ability to decipher what is the best route for him.

                  How appropriate his shirt would say.... JOSEPH FENG YU   "One Little TOUGH Guy"
                        We have a battle ahead of us, but we won't fight it alone.  God already knows the                                                              outcome and we stand with him and Him alone!